This is a test...and only a test. Of love and faith...

We are a family; A family filled with love and admiration for each other. We are a family learning to live a different life than we had imagined. We are a Mother and a Father of two beautiful and amazing children. A strong-willed, stubborn four year old little girl and a two year old little boy who teaches us every day what it is to be a fighter, a warrior, to be brave and to persevere... 

Our son keeps us on our toes: He has developmental delays, low muscle tone, has not yet started crawling or walking, but is able to sit up unassisted for short periods of time. He is non-verbal, but communicates his needs through sounds. He is not able to self feed and has difficulty chewing foods, but has made great improvement over the year. He has some visual impairment and sees better from the sides of his eyes. To top off the list, he has seizures that are difficult to control. 

My husband and I have witnessed our son go through a lot, to say the least. The experiences that our little guy has gone through has absolutely, without a doubt, changed our family. We still grieve at times for the life we originally imagined for ourselves. We have experienced deep heartache that still has raw spots.

One day, when the clouds lifted, my husband said to me, "I think we need to do a blog". He shared with me his desire to educate others about the challenges our son faces on a daily basis, how our family navigates having a child with special needs and while doing all of that, we can strengthen/ our hearts by helping other families like ours.

 Both of us will be contributing to this blog. Our blog will vary individually and we have no schedule/timeline for publish, but will post when we feel we must. It will be raw, unedited with all the feels. From joy to sadness, from frustration to anger. It might contain language that may offend others. No promises. Just truth. From a Mother. From a Father.

 We hope that you will stay awhile and join us on The Beautiful Journey. 

 Go in love.

Comments

  1. UnknownFebruary 19, 2019 at 10:06 PM

    Thank you for this Naz and Eric! This is not only a blessing but brave, just like Ezra. I'm so proud of you all <3 This is going to touch and help more people than you can imagine. Blessings and Aloha!

    ReplyDelete

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