West Syndrome
At a recent visit to Ezra's neurologist, we ran into one of the neurology fellows that had been quite involved in one of Ezra's first hospitalizations on an epilepsy unit last summer. So many emotions suddenly hit me when I saw her. As you could imagine, it was bittersweet to see her. She is physician that you could only hope to help take care of your child. She is sweet, very kind, caring, compassionate, has a soft spoken voice, and had words of comfort and support during a bitter, hard and fearful time... When you start researching "Infantile Spasms"or "West Syndrome", as it's also known by, you'll come across some worrisome and frightening words such as: extremely rare, very serious, catastrophic ... This is what Ezra was diagnosed with last summer, in June 2018. One morning in early May 2018, I had put Ezra into his feeding chair for breakfast. As I was feeding him, I noticed a subtle quick nod his head. Now, as a Mom of a special ne